Chronic Illness
Chronic illness re-organizes the lives of patients and drives much of contemporary healthcare. MCL investigators examine medical culture in cancer, dementia, epilepsy, and kidney disease.
Many MCL investigators study experiences with Alzheimer's disease and related dementias (ADRD). Within the healthcare system, we study how primary care clinicians diagnose dementia. We examine palliative and hospice care during the final stages of ADRD. Finally, we examine how people and communities respond and adjust to cognitive decline. In other chronic illness research, MCL investigators examine new and emerging treatments. We have studied how patients with late stage cancer deliberate about experimental treatment. We are tracing the social impact of implantable devices to treat epilepsy. Most recently, MCL investigators are studying how social position affects access to kidney dialysis.
Current projects
- Anticipating ethical challenges and disparities in the dissemination of novel neurotechnologies (Chiong, Dohan)
- Deploying High Value Longitudinal Population-Based Data in Dementia Research (Harrison)
- Human-Centered Design to Mitigate Burdensome Life-Sustaining Treatments at the End-of-Life (Dzeng)
- Understanding How Comorbid Conditions Impact Primary Care Management of Dementia (Bernstein Sideman)
